Neurological Rock Stars 2 – Parkinson’s Nautrally blog by Fred Phillips

http://fredphillips.wordpress.com/articles/healing-parkinsons-disease-naturally/#comment-615

Please follow the link to Fred Phillips Blog, and inspiring story of treating parkinson’s nautrally. Fred has taken the time and care to write about how he is using diet, yoga, meditation and emotional healing to treat his Parkinson’s disease symptoms.

His diet advice in particular in relation to inflammation and the relationship between gut and immune system function are really useful (to me especially! 🙂 ).

Fred has a very good understanding of the physiology of the body and how it all inter-relates.

Fred has also written a book about healing.

Fred is also a KARATE TEACHER!!! 🙂

 

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Anybody who experiences headaches or migraine of any kind will appreciate this post on migraine and shiatsu!

Get in touch!

Nature is so unkind. Not only do women have the sole responsibility for childbirth and monthly menstruation for 30+ years of our lives, but we also suffer from debilitating migraines 3 times more than men. Although young boys may suffer from migraines more often than girls, after puberty approximately 18% of women will exhibit signs of a migraine within their lifetime while only 6% of men experience this painful condition.

Along with a hormonal connection, migraines appear to have a genetic component as well. If one parent suffers from migraines, their child has a 40% chance of experiencing them, too. If both parents exhibit symptoms of migraines, the incidence in their child increases to a staggering 90%!

Migraines differ from normal tension headaches in that pain is normally concentrated on one side of the head and accompanied by a host of other symptoms including light, smell, or sound sensitivities, disturbed…

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just read this blog which starts with ‘skilful communication allows someone to speak from the heart’ really quite impressed by the essay and reading it made me think about how this could be useful in validating emotions.

Insight into Stroke – Jill Bolte Taylor Ph.D.

S = SPEECH, or any problems with language

T = TINGLING, or any numbness in the body

R = REMEMBER, or any problems with memory

O =OFF BALANCE, problems with coordination

K = KILLER HEADACHE

E = EYES, or any problems with vision

Stoke is a medical emergency call 911 US or 999 UK

I first saw Jill Bolte Taylor on TED talks. I was captivated by her moving insight into how she as a neuroanatomist perceived the experience of having a stoke. How it had given her access to the right side of her brain.

Last week I was in a book shop and saw her book ‘My stroke of insight, A brain scientists personal journey’(1). I saw her name on the cover and immediately realising it was written by this lady from the TED talk I purchased the book.

There is something very reassuring about reading about other people’s brain experiences. It really helps to make sense of mine.

Having a person with intimate knowledge of the architecture of the mind, talk step by step through what parts stop working and how the symptoms are interpreted is very helpful.  It has assisted in my own understanding of what could possibly be causing changes in awareness and ability.

The most important part of the book for anyone to read and understand is about how she recovered.

Jill became a neuroscientist because her brother had schizophrenia. She wanted to understand why and I think also to see if there was a cure.

At 37 she had a stroke.

It took her 8 years to get back to where she was pre- stroke, the only brain cells that were completely destroyed by the stroke were her mathematics cells. Despite this she had to re-learn everything.

There were several parts of her recovery that resonated highly with me.

First, she emphasised how important it is to honour the body’s need to sleep and just sleep when she needs to.

Second, that one of her greatest lessons was how to feel the physical component of emotion.

Jill was experiencing sensory overload after her stoke. Everything was overwhelming, light, noise , other people.

Because Jill was recovering she was learning how to deal with these emotions for the first time and had to learn to choose how to deal with them. If she didn’t like the way it felt she chose not to let it back into her neural loops. She says paying attention to what emotions feel like has completely shaped her recovery. She realised she was in charge of how she chose to perceive her experience. Little Windmill posted a really good story about Alexander the great and a yogi and anger which illustrates this; http://littlewindmillyoga.com/2012/12/05/alexander-the-great-meets-a-yogi/

In relation to medication, post- surgery she had to take Dilantin for 2 years afterwards in case she had a seizure. Her biggest complaint about this was that she didn’t know what it felt like to be ‘me’ anymore and says that she is more sensitive to why some people would choose insanity over the side effects of antipsychotic medications.

Physically, she talks about the importance of exercising her muscle groups, walking , massage and acupuncture treatment which helped her to identify her physical boundaries. One of the side effects of her stroke was that she felt ‘fluid’ and very much a part of the universe.

The part of this story that is most important is that Jill shows you can recover from a stroke.

It is not necessary to experience a stroke to find inner peace. We can choose left or right brain talk, and although she acknowledges that in cases of serious mental illness this may not be possible, I am very much behind her on her mission that choosing inner peace is an idea worth spreading.

http://www.ted.com/talks/jill_bolte_taylor_s_powerful_stroke_of_insight.html

1)      http://www.mystrokeofinsight.com/

 

Another Rare Drugs Free Sighting! Flying without wings – someone who got off anticonvulsants!

I am very excited!

A couple of weeks ago I blogged about ‘Epilepsy drugs free – is it possible to fly without wings?’

This was about the one and only person I have ever read about managing epilepsy without anticonvulsant medication.

BUT I am happy to announce I was wrong!

There is MORE than one!

I have discovered a blogger who has recorded her journey towards anticonvulsant free epilepsy management and put it online!

It’s like Christmas! Well it nearly is in 3 weeks!

The link to the blog is here:

http://epilepsycure.blogspot.co.uk/search?updated-min=2011-01-01T00:00:00-08:00&updated-max=2012-01-01T00:00:00-08:00&max-results=12

The blog, somewhat ambitiously titled ‘The Epilepsy Cure’ (Well why not reach for the stars?) Caught my eye straight away!

The first blog is January 2009

http://epilepsycure.blogspot.co.uk/2009_01_01_archive.html

And describes how the journey began.

The final blog is September 2011

http://epilepsycure.blogspot.co.uk/search?updated-min=2011-01-01T00:00:00-08:00&updated-max=2012-01-01T00:00:00-08:00&max-results=12

In a nutshell this medical student blogged her way through coming off medication and has road tested nearly every natural therapy for epilepsy known to mankind. Not only that but at the end she and her partner are about to become 3!

Not a nearly extinct species either!

She emphasises this is not a guide, and that anyone reading should do their own research, but it really is a good read!

Enjoy!

Epilepsy Drugs Free – Is It Possible to Fly Without Wings?

One year ago I opened my copy of Epilepsy Action ‘Epilepsy Today’ magazine to read the ‘My Journal’ experience pages. (1)

There before my eyes was the story of a lady so rare that she could be listed as an endangered species next in line to the Dodo.

The story read:

‘The Jury is still out on whether complementary therapies can be effectively used to treat epilepsy. After an initial seizure, Emma Wilkinson decided to try them for herself.’

‘There is very little available information about treating epilepsy naturally, without medication. If you ask your doctor about it, they will probably say that there is no scientific evidence to prove it is possible. Yet, I have done it – through natural health my seizures have stopped. After being diagnosed with epilepsy, I began upon a natural route. I have seen incredible results on my health. It is my hope that by sharing my journey, you may be inspired to look into the treatments that may be used alongside your medication.’(p 27)

Unfortunately although Epilepsy Action have started posting new issues of the magazine online the back issues are not yet up, so I will briefly outline Emma’s story.

Emma started having seizures in 2008 following a gym training session which caused her to develop a migraine and on the way home she had her first seizure.

After initial investigation and a tumour scare, her neurologist told her that a small area of her brain showed up as having died, and was harmless (not a tumour), but caused an increased risk of seizures. This condition was linked to head injury but Emma had never had one.

She had been living with Bulimia for 7 years at the time and was not sure when to tell her neurologist.

She was diagnosed with Primary generalised seizures and epilepsy in 2009, when she was offered anticonvulsant medication.

At this point Emma’s story deviates drastically from the one’s I have read about previously, because she decided to meet a natural nutritionist who listened to her concerns about the side effects of anticonvulsant medication.

She says she was cynical about meeting her nutritionist because she didn’t see how changing her diet could stop her having seizures; her doctors were quite clear there was something wrong with her brain. The nutritionist really listened to her which was the first time she felt this had happened.

Information was gathered about events surrounding her seizures, emotionally and physically, health from birth to present day, Family history of health and illness, her troubled relationship with diet and exercise.

The nutritionist was clear that she could not ‘treat’ epilepsy, but the aim was to improve migraines that seemed to be linked to the condition.

‘She (the nutritionist) explained that when we suppress illness symptoms, our bodies lose the ability to tell where imbalances lie. Her job was to understand those imbalances and teach me to treat them appropriately through gentle detoxification techniques.’(p 29)

Additionally, to help Emma reduce the stress of experiencing epilepsy.

Emma made dietary changes, created a tailored supplement programme using naturopathic techniques from the nutritionist.

Emma says ‘It was the first time since my seizure that I felt so optimistic. Rather than being consigned to a lifetime on drugs, I was given an option of trying a different way. In natural health I was expected to take an active part in my own healing process. I would rather that than passively accept a one-size-fits all drug.’

Emma’s friends and family had reservations but within 6 weeks Emma noticed fewer migraines with loss of vision.

Additionally she felt she had more energy, felt less stressed and craved less exercise, she felt the incentive to continue.

She also enrolled in counselling specifically to help with her bulimic symptoms. She went to psychotherapy. Understanding how her early life had formed her thinking, feeling and behaviour and how it affected her relationship with food. It also helped her come to terms with having epilepsy.

Things got complicated when she started her teacher training. Emma had to rely on public transport where before she could drive. Between the long journeys, work and pressure she became tired, relapsed into her old stress, exercise and bulimia problems and so a year after her first seizure she had another one.

Obviously she was devastated. With a second seizure came further loss of independence and driving. Her consultant said she was at 90% risk of more seizures.

‘After much deliberation, I came to terms with the fact that I was responsible for my own health. Perhaps another seizure was just part of the journey. It told me that something within my body was not right and needed to be addressed, rather than supressed. I could see that, despite having this second seizure, I had come so far with my health. I felt that I owed it to myself to continue. With renewed determination, I moved onto the most important part of my healing process. I didn’t want to simply work towards reducing the likelihood of having another seizure. I was finally prepared to understand what factors, other than diet, were causing them.’

Emma purchased ‘Treating Epilepsy Naturally’ by Patricia Murphy (2).

She started to receive acupuncture and zero balancing therapy in addition to nutritional therapy. She went to a complementary therapist for massage which helped her to manage stress.

Her migraines totally disappeared.

‘My overall health and vitality blossomed. I was experiencing a wonderful state of full health for the first time in ages. These practitioners have also helped support my body through detoxification. They have enabled me to get rid of negative thinking patterns. They have allowed me to understand how my emotions are mapped onto my physical body.’

Emma states that her ‘team’ of therapists helped her to come to the painful realisation that she thought she was unable to love and accept herself unconditionally.

‘All of this work helped me make lots of positive physical and emotional changes. It is only through this understanding of my physical body that I made the biggest achievement of all. I learned to believe in my own self-worth. I can love and respect myself.’

In December 2011 Emma had been seizure free since 2009 and was looking forward to a career in music and was experiencing good physical and emotional health.

Emma finishes by acknowledging the contribution that western medicine has had on epilepsy treatment options.

She goes onto say ‘Western medicine encourages us to believe that doctors hold the power and have the answers that will cure us. It does not encourage us to listen to what our bodies are telling us or try to understand why a seizure occurs. I have learned that full health is my right – but it is also my responsibility.’

Emma ends by saying that natural health offers a totally effective therapy that can be tried alongside medication. She thinks it can work for everyone.

Epilepsy Today have BIG red writing paragraphs underneath about there being no scientific evidence to suggest that any type of complementary treatment is successful in curing epilepsy; AND about using complementary treatment alongside anti-epileptic medication rather than on its own.

It also signposts to www.cnhc.org.uk Complementary and Natural Healthcare Council to find a trained and qualified complementary healthcare practitioner.

Personally there is a lot about Emma’s story that I could relate two, although the circumstances around our epilepsies are completely different.

I would also state that in my experience no anticonvulsant medication has ever ‘cured’ the seizures I experience.

I have also used a large number of complementary therapies on my epilepsy journey, and there is a small army out there who I need to thank.

Unlike Emma I do take anticonvulsant medication. I was very young when my seizures started and so never had the opportunity to choose alternative therapy as a sole treatment from the outset.

I sometimes wonder what it would have been like to try alternative therapy as my main source of treatment, and whether or not the drugs I have taken over the years prevent me from ever finding out.

I don’t know what research there is in relation to neurodevelopment when anticonvulsants are prescribed.

Research into Cannabis shows that this drug does affect neurological development (3), I wouldn’t trust a drug company to honestly state what anticonvulsant medications do to the developing brain, but I still take my medication. (4) I did have really big problems with learning on some medications.

Emma mentions a book by a lady who chose to treat epilepsy naturally; I have found a second in my search for natural treatment see (5).

From this I have concluded that the incidence of completely natural epilepsy treatment is very much like spotting an extremely rare bird, there isn’t a high incidence of sightings.

For me Emma’s story goes to show it is possible in some RARE circumstances to ‘fly without wings’ and go it alone without medication, and for her sharing her story I am grateful.

She might be rare but she is flourishing and that is really something to behold.

Emma BELIEVES she can fly.

Not everyone is so fortunate.

It has served to highlight to me how unique we really all are in our health needs, experiences and treatments.

1)      Epilepsy Action Magazine – Epilepsy Today Issue 110 December 2011 pages 27-30.

http://www.epilepsy.org.uk/news

2)      http://www.amazon.co.uk/Treating-Epilepsy-Naturally-Alternative-Therapies/dp/0658013793

3)      http://www.mcpap.com/pdf/Cannabis.pdf

4)      http://www2.massgeneral.org/childhoodepilepsy/child/index.htm#anticonvulsant

5)      http://books.google.co.uk/books/about/Treating_Epilepsy_Naturally.html?id=lj99VaBHSFcC

Epilepsy in Chinese Medicine – ‘Towards a spirit of Peace’

‘Towards a spirit of peace’ is one of the most interesting texts I have ever read about epilepsy in the context of Chinese Medicine and is available on line. It is a work by an author named Subhuti Dharmananda, Ph.D. (see link below)(1).

This is NOT a text about epilepsy although it is covered, but rather it looks at a wider concept. The ‘Shen’ or ‘spirit’ in Chinese medicine and its embracing view of the body heart-mind in oriental medicine.

The ‘shen’ or ‘heart-mind’ is how I think about it in words, but mostly I would say ‘spirit of the heart’ is how I feel about it.

I feel that the role of the heart in Chinese medicine is seen as having a great deal to do with consciousness. From what I have read of Ayurveda it appears to be held as the same or similar.

In the west the heart is perhaps overshadowed by the brain’s electrical discharges, and the importance that is attached as the brain being the ‘hub’ of the body. (2)

The first chapter of this book goes to great lengths to explain the Shen, and so I will not go into it in depth, except to say that the heart is seen as ‘the Emperor’ in its role alongside the other organs of the body.

There are barriers that cause problems in understanding in relation to accessing information on Chinese medicine.

The Chinese language is written as ideograms, the sounds of the language all are totally alien to English language speakers. Variations in tone and pitch could be compared to learning to play a new musical instrument for the English tongue; a language that has you patting your head and rubbing your belly, and tap dancing all at the same time.

Then the philosophy, differences in thinking, the possible conflicts that arise from cultural, social, and religious beliefs.  The Great wall that surrounds China could be a metaphor for many barriers in understanding.

Why did I read this text?

The most beneficial part of my tai chi training by far has been in relation to training in awareness. Perhaps this is also called mindfulness? (3)

Without awareness I wouldn’t be able to feel seizures starting, I wouldn’t feel that my back hurts, my joints hurt and my belly is churning. Is my vagal nerve trying to tell me something? Is my anger or my fear or my grief making me ill?

I don’t know, but if I feel then I can try to understand.  If I am aware how I feel then perhaps I can change the emotion.

When I feel emotions, I am more likely to become ill, in particular if I don’t acknowledge them and where and how they have arisen.

This text talks about emotions in the context of ‘emotional equilibrium’ something I’m sure we all aspire to obtain but very, very few I suspect will achieve.

Even if we have fleeting glimmers of equilibrium, there may well be more emotional storms than sunny days.

Who feels good all the time anyway? Isn’t it part of being human to feel, in all the emotional colours?

My emotional storms are accompanied by lightening, this has given me extra motivation to want to look at how to heal them before they take a hold and turn into a thunderstorms.

It may be that describing it in words is not appropriate because it relates to feeling.

I don’t like being allergic to emotions.

The last time I cried for a day because I was sad, I had seizures for 2 days afterwards. I don’t know which is worse; crying because I am sad or the fact that if I cry then I’ll have a seizure.

Does this mean heart is broken?

I don’t think so, I still feel with my spirit the same as everyone else.

1)      http://www.itmonline.org/shen/index.htm

2)      http://www.wakingtimes.com/2012/09/12/the-heart-has-its-own-brain-and-consciousness/

3)      http://alysonyoga.wordpress.com/2012/11/04/whos-in-control-of-your-mind-one-benefit-of-mindfulness/

Epilepsy and fear – Why Shiatsu?

“Transformation happens when we live through the experience of deep fear. Seeing fear as a signal to hide in some realm of safety prevents our connection to what lies behind our self-identity. When we ignore parts of ourselves, or the world, in response to fear, we insist on too small an identity. If we are lucky those ignored parts will come knocking at our door revealing what appears menacing to be actually some part of ourself which we cannot yet accept as our own. “

Bridgette Ludwig Shiatsu Society Journal Autumn 2012

Health problems bring us closer to fear. They remind us we are not immortal.

One problem of living with epilepsy is that there is the fear. The fear of when the next seizure will come. The fear of not waking up.  Spending waking moments wondering about black out or experienceing altered states of consciousness? Fear of loosing control or having no control over the way life opens out. It is hard to plan ahead when there is no guarantee that seizures won’t get in the way.

Coping mechanisms for this type of problem can allow us to carry on and live life to the maximum. Feeling grounded and centred in the body is helpful to remind us that we are ’in our bodies’ rather than ‘out of our bodies’ in the sense of unconscious and disconnected by the experience of living through a seizure.

The power of touch in particular, in this example shiatsu, can bring us back into our bodies and help us to realign with life following disconnection brought about by seizures.

It is important that coping mechanisms don’t become our prison. Change is the essence of moving through and forward through fear.

Without fear there would be no control. We instinctively look to control our lives but is there any control when none of us can be certain what will happen next?

Fear cripples if it is not challenged.

Only when we challenge the fear does it loose its power and therefore the control it has over us.

“The whole secret of existence is to have no fear. Never fear what will become of you, depend on no one. Only the moment you reject all help are you freed.”
Buddha

Read more at http://www.brainyquote.com/quotes/keywords/fear.html#6JqP39s9pl2Qk8SL.99

Shiatsu is a holistic therapy which utilizes healing touch and treats the whole person mind, body and spirit.

Read more about it at:

http://www.shiatsusociety.org/content/about-shiatsu