Wellness Warrior meets Wellness Warrior – Jess Ainscough interviews Lissa Rankin

http://www.thewellnesswarrior.com.au/2013/05/mind-over-medicine-my-interview-with-dr-lissa-rankin/

Two of my favourite wellness warriors get together to discuss Lissa Rankin’s new book ‘Mind over Medicine’.

Both of these ladies are very much on my page when it comes to health.

This interview is well worth listening to.

Important points raised during the interview are;
What does your body need to heal? What prescription does your body need you to prescribe for yourself? What would you do if you could do anything you wanted, to make yourself better?

– Leave your abusive relationship?
– Leave your horrible job?
– Go to college?
– Move countries?
– Get married?
– Do something you always wanted to do?
– Get a new job with a better employer? 🙂

Lissa’s idea about letting the patient write the prescription for themselves is really liberating.

In the context of epilepsy research I think it is relevant to the epilepsy research project what treatment would you prefer?:

http://www.epilepsy.org.uk/research/take-part/projects-you-can-take-part-in/patient-preferences-treatment-options

https://epilepsymeandneurology.wordpress.com/2013/05/20/national-epilepsy-week-19th-may-23rd-may-2013-what-treatment-do-you-prefer/

Nobody is the same, so everyone will need different treatment.

Healing is not neceserraly curing.

The moral of the story – Turn off your stress response, it could save your life.

I love epigenetics!

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National Epilepsy Week 19th May 23rd May 2013 What Treatment Do You Prefer?

National Epilepsy Week this week and there is a reason to celebrate, because this month Epilepsy Action magazine published an article about an epilepsy research project titled; ‘Which treatment would you prefer?’.

A very sensible question, its always nice to be asked what you want!

🙂

you can take part by following the information in this link;
http://www.epilepsy.org.uk/research/take-part/projects-you-can-take-part-in/patient-preferences-treatment-options

BIG THUMBS UP TO THIS PORJECT!

*Actually its full title is ‘People’s Preferences and Priorities for Treatment Options and Outcomes in Epilepsy’ but I like to get to the point.

Epilepsy Research Is Getting Cool So Your Brain Isn’t Smoki’n!

http://www.epilepsy.com/newsletter/may13/brain_cooling?utm_source=Epilepsy+Therapy+Project&utm_campaign=bc6a33ff69-Epilepsy_News_5_1_13&utm_medium=email&utm_term=0_cf0feb6500-bc6a33ff69-12439845

Following in the brain cooling tips of ‘The Lazarus Effect’(1) for cardiac arrest Dr Sirven of ETP (see link above) this week gives us the lowdown on brain cooling research for epilepsy treatment.

This excerpt says:

‘In the early view version of the journal, Epilepsia, Drs. Motamedi and colleagues from the Department of Neurology and Neurosurgery at Johns Hopkins University School of Medicine and the Department of Pharmacology and Physiology at Georgetown University School of Medicine present a critical review and opinion article. It is known that brain cooling, otherwise known as therapeutic brain hypothermia, is already a standard of care for a condition such as cardiac arrest in adults, or in neonates in the situation of hypoxic ischemic encephalopathy. However, there has been an increasing number of research papers that have looked at the concept of utilizing hypothermia to help control seizures that might be used as part of an implantable device to cool the brain in a specific region. In this well written review, Drs. Motamedi and colleagues discuss research innovations in developing cooling as a viable option for the treatment of drug resistant epilepsy.’

So should we all be booking holidays in Iceland or heading for our refrigerator’s frozen broccoli and bags of peas to get out of the heat?

Well it is a bit soon to tell, but as this article from Kaitllyn Roland (2) emphasises the importance of being sensible about the type of exercise you do, and how to take care about body temperature in particular if you are prone to seizures.

I for one won’t be booking my trip to Spain in the middle of August or trying to navigate the Sahara desert, but everyone has their limits!

I hope this article finds you chilling out with some sunny weather keeping cool in the shade, spring may have finally arrived in the UK, or is it our summer?. 🙂

1) https://epilepsymeandneurology.wordpress.com/2013/04/26/%ef%bb%bfheart-brain-and-out-of-body/

2))http://kaitlynroland.wordpress.com/2013/05/01/hell-being-competitive-and-hot-yoga/#comment-504

Singing for Alzheimer’s and Mysicophilia by Oliver Sacks

 

I recently had cause to dig out my copy of Oliver Sacks book Musicophilia and lend it to a friend, because she has started to volunteer for an organisation that is using singing to help people with Alzheimer’s. This improves memory, health and wellbeing.

For those of you that are interested the Alzheimer’s society project link is very interesting.

http://alzheimers.org.uk/site/scripts/documents_info.php?documentID=760 and shows a video of the project and has links explaining what it is.

I know a lot of people who have said sound effects their epilepsy, I found this  newspaper review that explains what Musicophilia has to say about Alzheimers and epilepsy.

If anyone wants to borrow my copy just let me now and I can lend it to you when it gets back to me!

‘Sacks tells some very moving stories about those with terrifyingly profound amnesia, or Alzheimer’s disease, for whom music can “restore them to themselves”. People with aphasia can be taught to speak again through singing. On the other hand, previously healthy people begin to have “musical hallucinations”, blasted by intrusive ghostly music during every waking second; and others have seizures in response to music, or “musicogenic epilepsy” – which, intriguingly, can be selective. One woman Sacks cites “had seizures only in response to ‘modern, dissonant music,’ never in response to classical or romantic music” – and her husband was a composer of the type of music that gave her seizures, which one suspects may be a hint. But such a violent response to certain music might be more common than suspected: “Many people, [one researcher thought], might start to get a queer feeling – disturbing, perhaps frightening – when they heard certain music, but then would immediately retreat from the music, turn it off, or block their ears, so that they did not progress to a full-blown seizure.” Indeed, certain styles of free jazz have always made me physically nauseous.’

http://www.guardian.co.uk/books/2007/nov/03/scienceandnature.music review Stephen Poole The Guardian Newspaper

Natural Approaches to Epilepsy Alan R. Gaby, MD

 

The Alternative Medicine Review Volume 12, Number 1 2007 published this excellent article by Alan R Gaby on epilepsy alternative natural treatments. It goes into the multiple variables including vitamins, minerals and hormones that surround epilepsy diet, and therapy such as Ketogenic and Atkins diet therapy. (great reading list at the back in the references!)

Useful information for all people with epilepsy with or without anticonvulsant medication.

A good example of epigenetic study into epilepsy diet. See here for full article:

http://www.altmedrev.com/publications/12/1/9.pdf

Hoping that all readers (with or without epilepsy) are feeling beautiful today! I am feeling much better, thank- you Sita and Natalya.

Guest Post – Autism And Epilepsy Combined

I would like to thank http://rosewinelover.com/ epilepsy action advocate once again for taking the time to write a guest post.

This month epilepsy me and neurology  has asked me to write a brief (or not-so brief) piece on what it’s like to live with both epilepsy and autism; I shall endeavour to do my best. Continue reading

life at full volume – meditation and diet fatigue fighting and side effects of anti epileptic drugs – GREAT blog!

Life at Full Volume

550131_425393197537643_1221104998_nAs a person living with epilepsy, I not only fight seizures, but I fight fatigue. And I fight fatigue with a mighty vengeance, baby. You’re probably wondering why I’m so fatigued. Well, I’m on a lot of Anti Epileptic Drugs (that’s just a fancy way of saying medication, but I kinda like Anti Epileptic Drugs. It sounds fancy!) and a common side effect of all of them is fatigue. So I can easily have a solid eight hour sleep and still feel tired throughout the day. It’s not the kind of tired where it’s like “Oh, a little coffee could cure this!” It’s the kind of tired where you feel like you could fall into bed and sleep for hours. And hours. And HOURS. But the thing is, sleep does absolutely nothing to fix this side effect. In my opinion, it just makes it worse, because you’re throwing off your…

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Get Plugged Into Earth – Thanks Anne!

http://www.bbc.co.uk/iplayer/episode/b01r5s20/Ramblings_Series_23_Michael_Weltike_Barefoot_Walker/

Thanks to my chi-gung  teacher for sending this link to aBBC radio barefoot walk and talk about the benefits of barefoot walking.

How to be more grounded with these steps :

Take of your shoes and socks, walk on the ground outside, OBSERVE how you feel when your feet are on the ground!

Simple, and free!

We live on a big round  Earth! 🙂

Neurological Rock Stars 4 – Dai Greene Captain GB Athletics Team

http://www.epilepsysociety.org.uk/WhatWeDo/News/DaiGreenecaptainsGBteam

I came across this piece in epilepsy society about Dai Greene, a fellow welsh person and his inspiring athletics career. His career in athletics  has assisted him to manage his seizures without medication.

There is a link to an interview with Dai Greene in Epilepsy Review issue 2 2011.

He talks about combating common problems with epilepsy by health, lifestyle and sleep management.

He talks about the differences between his seizure management and his brother who also has epilepsy.

Really impressive and inspiring story!